Global Genes Global rare disease advocates.

Founded in 2008, Global Genes is an international nonprofit organization that connects, empowers and inspires the rare disease community, with the ultimate goal of improving the lives of the more than 400 million rare disease patients around the world and their families. We fulfill our mission by helping patients find and build communities, gain access to resources, connect to stakeholders, and become effective advocates on their own behalf. If you or someone you love have a rare disease or are searching for a diagnosis, contact Global Genes at 949-248-RARE.